Because I’ve mentioned here that it was coming up, I’m just going to share a quick update on my recent neurology appointment.
Apparently I do have some active lesions right now, which is not what you hope to see on the MRI results. But they’re teeny tiny. Nothing too scary.
Despite the lesions, I left the appointment with an overwhelming sense of optimism. My doctor, who is amazing, is changing my medication to try to find one that will work even better. She’s going to keep a close eye on my brain (MRIs every three months) until she’s happier with the results. I very much appreciate the aggressive approach she’s taking. You’re always going to get good news and bad news. In either case, “we can do better” is something that every patient wants to hear.
As of last week, I’m off Gilenya. In a month, I’ll start a new drug: Tysabri. Being in between drugs gives me an exposed feeling. I keep thinking I’ve forgotten to do something. I’m more suspicious than ever that any twinge is going to be a new symptom. I feel like it’s starting to rain and I don’t have an umbrella with me. But it’s just for a month, and then I’ll have a brand new umbrella.
That’s about it. More to come later.